high PROLACTIN levels
599 Replies
bciervo - June 26

Jyot- how did your IUI go? I have a good feeling about it for you- it's so frustrating when things are perfect and it still isn't happening.... when is your next blood test? 7 dpo? Are you on progesterone too? I started my prog the night after my insem- that's one thing I like taking- it makes me feel good that I'm supporting a possible pregnancy- good luck to you! I'll keep my fingers crossed.

 

jyot - June 27

Hi Bciervo,I am hoping for the best for you.Just 2 more days!I can imagine.Dont let the frustration get the best of you.I am sure it will happen.
My IUI went fine.Had a little spotting and cramping soon after IUI. The nurse said that it happens.Did you have that? I ovulate on the 14- 15th day too but My RE said that high prolactin does affect implantation,also the quality of egg(not good for fertilization)..This is my first month trying with normal prolactin levels.I am praying really hard. But since you have had normal levels for a while ,I think Clomid will be good since you have more good egges and thus better chances of fertilization.Just curious,what is a lap done for? Re wanted to do three clomid cycles before he moved on to the next step.Gigilbui,welcome. I think you should see you RE about your levels.I dont know anything pituitary tumors.But high prolactin is totally treatable is what all docs say.
Praying for you.Jyot.

 

jyot - June 27

Bciervo,i am not taking progesterone.I asked my nurse and she said that my RE does not believe in giving progesterone until preg is detected.I guess all docs are different. They wanted a blood test 14dpo but i probably wont be in town.So tha'll leave me with the regular HPT.The blood test may have to be done when i get back which is 21dpo provided i dont get my period by then.so...tons of good luck to all of us!!!

 

holland - June 27

Jyot and Bicervo...Have your doctors ruled the MAIN issue that is keeping you from becoming pregnant is because of high prolactin? I've been on bromo going on 8 weeks... still no period... I get blood done again in 2 weeks if I haven't started and my levels are down... they're going to move on to ruling out the next issue. Whatever that could possibly be....None of my Drs have reccomended progresterone or IUI... But, I guess they first want me to have a period and then when that happens who knows how long it will take. Bicervo... We're thinking of you, not much longer until you find out , right? Jyot and Bicervo you all are both further ahead in the game... I'm thinking of you both I know these next couple of days and weeks are tough. Keep me posted.

 

holland - June 27

Gigilbui... your tumor is large and sometimes with prolactin levels that remain that high even while on meds... the best thing to do is get surgery. Sometimes it is the only way. If you scroll up several months I believe there are a couple entries on what it was like to have the surgery. There is also alot on the internet. I believe they go in through your nose. The most important part is to keep taking your medicine... in situations like hyperprolactinemia and in having a macroadenoma... you need to follow your doctors orders especially with the medicine. You may also want to consider a second opinion or seek out the help of a reproductive endocrinologist. My DR. says I need my levels down below 20. I would say the biggest issue now would be to resolve the Macroadenoma (tumor) either with continuing meds or with surgery, get your levels where they need to be... THEN try to get pregnant. We all can relate to your frustration and worry. It helps to take this one issue at a time and it seems as if your biggest issue at hand is this tumor. Best wishes.

 

jyot - June 27

Holland,I think if your levels are still not getting below 20, you should have your RE change you to dostinex.I heard it is much more efficientI was on Bromo for three and a half months .It did reduce my cycle from 31-35 days to 29 , levels from 80 to 25 but not below that. He then changed me to dostinex and would you believe it,in three weeks it was down to 11.5 and my period lasted two and a half day which was never ever the case.I am sure it will do it for you.And still 8 weeks on bromo is still only two months. I know its frustrating but like you reminded us ,High rolactin needs to be controlled.so ahng in there.I am almost obsessed with this site now.I could be loggin in almost two times a day to see new posts!!

 

holland - June 27

Jyot, My level is on the cusp of being where it needs to be. It went down in a month from 26 to 21.9 then he upped my dosage to 2 x's per day. Hopefully that would do the trick. My worry is that it will drop where it needs to be and then I STILL won't have a period. I know... this chat room gets me through. You all are great!

 

bciervo - June 28

hi guys- just letting you know that I got the call about an hour ago and it was negative. I seriously had myself thinking it was going to be + the last 24 hours. I'm soooo bummed. I took it hard- but I always pull myself out of it- on to the next month. Luckily- DH and I are leaving tonight for the beach until Saturday. I thought we just might have something to celebrate but- of course it never works out that way! I know it will happen one of these days for us all. I hope you all have a great weekend and I'll check back on Monday. Brooke

 

Rachel5 - June 28

bciervo - I'm sorry to hear about the negative test.

Have I mentioned to you girls that they found a 5mm microadenoma in the right side of my pituitary. I never knew such a thing existed - just crazy. I am still ovulating but it seems to be getting weaker, I have the o pain and it takes another 2 days for the temp rise. It used to happen all on the same day, it's like things are slowing down. I have yet to hear when my appt will be with the endocrinologist, like seriously, how long does it take to book an appt. I'm still going to the fertility specialist but no news there yet, not till our appt on July 26th.
How is everyone else?

 

jyot - June 29

Bciervo,sorry to hear that.Please take a good break at the beach.You need that.It must be the lap next.I hope that will give us more info.Maybe you can talk to RE about clomid to up your chances.
Rachel5,atleast now, the problem has been found.Things will turn around soon as treatment begins.Are they planning surgery or just meds.

 

holland - July 6

Bicervo... I hope you had a peaceful vacation. I was thinking of you... we're all thinking of you... each of us are thinking of each other and that is what this support site is about. Let us know what the next step is.

 

holland - July 6

I have a question? What do you do... and/or what does it mean if your prolactin levels are now normal from being on bromocriptine but still no period?

 

bciervo - July 6

Thanks for checking in on me- I'm doing okay. I meet with my doc Tues morning to see where we go from here. Hope all of you are doing well- holland- I'm not sure why a period wouldn't start if the level is normal- it can be such a mystery. Maybe it just takes time. Have you asked your doctor why it hasn't started yet?

 

bl - July 6

Hi, I was on here a while back. I went for a consultation with an re last week. My prolactin was 80, now with bromo it's normal. Well, the re thinks since I've been ovulating and having regular cycles with the high prolactin, that's probably not the reason I not getting preg. I was kind of shocked because ob said that was the cause. She thinks that since I have issues with spotting it could be something else. I've decided to do some testing to figure out what else it could be.I just was wondering if your re's said high prolactin was the only cause for not conceiving??

 

Rachel5 - July 6

bl - good question. I just had my very 1st meltdown today in the past year of ttc. I went to the endocrinologist today and he does not feel that my high prolactin levels are causing a problem cause I have regular cycles. I assumed that I was ovulating based onmy charts but my fertility specialist said that is not fullproof during my endometrial biopsy on Tuesday. Anyway, I read the results from my MRI and it said "suspicious of a 5mm microadenoma" - they did not say 100% there was one. The endocrinologist said that people with adenomas have prolactin levels in the hundreds not around 50 like me. He is sending me for a retest of prolactin his way and also for a glucose test to rule out insulin resistance. In some women with polycystic ovarian syndrome they have elevated prolactin levels. So how about that! His got feeling is PCOS. We shall see what the glucose results end up being in a couple weeks. I also get irregular spotting, starts at about 12dpo all the way to a/f, it was enough that I used a tampon last month...

 

bl - July 7

Rachel, I had a meltdown after seeing the re also. I was so confused! My re hasn't mentioned pcos or want to do insulin test. She did think the spotting could be from polyps or possible endometriosis. I don't have any symptoms of either except for the spotting. I'm going to do an internal untrasound with sailine to check for poylps, uterus, and egg reserve in ovaries. I'm also thinking about doing hsg? Did the re mention any of those tests to you? Do you have any symptoms of pcos? I'm almost positive that I ovulate. I have cm, lh surge, and real a/f exactly two weeks after bbt rise. But then again, who knows!!

 

Message:


New to the forum?

Sign Up Here!


Already a member?
Please login below.





Forgot your password?
Need Help?